“A question of trust” and “a leap of faith”-study participants' perspectives on consent, privacy, and trust in smart home research:Qualitative study

BACKGROUND: Ubiquitous, smart technology has the potential to assist humans in numerous ways, including with health and social care. COVID-19 has notably hastened the move to remotely delivering many health services. A variety of stakeholders are involved in the process of developing technology. Where stakeholders are research participants, this poses practical and ethical challenges, particularly if the research is conducted in people’s homes. Researchers must observe prima facie ethical obligations linked to participants’ interests in having their autonomy and privacy respected. OBJECTIVE: This study aims to explore the ethical considerations around consent, privacy, anonymization, and data sharing with participants involved in SPHERE (Sensor Platform for Healthcare in a Residential Environment), a project for developing smart technology for monitoring health behaviors at home. Participants’ unique insights from being part of this unusual experiment offer valuable perspectives on how to properly approach informed consent for similar smart home research in the future. METHODS: Semistructured qualitative interviews were conducted with 7 households (16 individual participants) recruited from SPHERE. Purposive sampling was used to invite participants from a range of household types and ages. Interviews were conducted in participants’ homes or on-site at the University of Bristol. Interviews were digitally recorded, transcribed verbatim, and analyzed using an inductive thematic approach. RESULTS: Four themes were identified—motivation for participating; transparency, understanding, and consent; privacy, anonymity, and data use; and trust in research. Motivations to participate in SPHERE stemmed from an altruistic desire to support research directed toward the public good. Participants were satisfied with the consent process despite reporting some difficulties—recalling and understanding the information received, the timing and amount of information provision, and sometimes finding the information to be abstract. Participants were satisfied that privacy was assured and judged that the goals of the research compensated for threats to privacy. Participants trusted SPHERE. The factors that were relevant to developing and maintaining this trust were the trustworthiness of the research team, the provision of necessary information, participants’ control over their participation, and positive prior experiences of research involvement. CONCLUSIONS: This study offers valuable insights into the perspectives of participants in smart home research on important ethical considerations around consent and privacy. The findings may have practical implications for future research regarding the types of information researchers should convey, the extent to which anonymity can be assured, and the long-term duty of care owed to the participants who place trust in researchers not only on the basis of this information but also because of their institutional affiliation. This study highlights important ethical implications. Although autonomy matters, trust appears to matter the most. Therefore, researchers should be alert to the need to foster and maintain trust, particularly as failing to do so might have deleterious effects on future research

Vesta:A Digital Health Analytics Platform for a Smart Home in a Box

© 2020 This paper presents Vesta, a digital health platform composed of a smart home in a box for data collection and a machine learning based analytic system for deriving health indicators using activity recognition, sleep analysis and indoor localization. This system has been deployed in the homes of 40 patients undergoing a heart valve intervention in the United Kingdom (UK) as part of the EurValve project, measuring patients health and well-being before and after their operation. In this work a cohort of 20 patients are analyzed, and 2 patients are analyzed in detail as example case studies. A quantitative evaluation of the platform is provided using patient collected data, as well as a comparison using standardized Patient Reported Outcome Measures (PROMs) which are commonly used in hospitals, and a custom survey. It is shown how the ubiquitous in-home Vesta platform can increase clinical confidence in self-reported patient feedback. Demonstrating its suitability for digital health studies, Vesta provides deeper insight into the health, well-being and recovery of patients within their home

MARIA M4:clinical evaluation of a prototype ultrawideband radar scanner for breast cancer detection

A microwave imaging system has been developed as a clinical diagnostic tool operating in the 3- to 8-GHz region using multistatic data collection. A total of 86 patients recruited from a symptomatic breast care clinic were scanned with a prototype design. The resultant three-dimensional images have been compared “blind” with available ultrasound and mammogram images to determine the detection rate. Images show the location of the strongest signal, and this corresponded in both older and younger women, with sensitivity of [Formula: see text] , which was found to be maintained in dense breasts. The pathway from clinical prototype to clinical evaluation is outlined

Energy Neutral Activity Monitoring:Wearables Powered by Smart Inductive Charging Surfaces

Wearable technologies play a key role in the shift of traditional healthcare services towards eHealth and self-monitoring. Maintenance overheads, such as regular battery recharging, impose a limitation on the applicability of such technologies in some groups of the population. In this paper, we propose an activity monitoring system that is based on wearable sensors that are powered by textile inductive charging surfaces. By strategically positioning these surfaces on pieces of furniture that are routinely used, the system passively charges the wearable sensor whilst the user is present. As a proof-of-concept example, experiments conducted on a prototype implementation of the system suggest that 36 minutes of daily desktop computer usage are on average sufficient to maintain a wearable sensor energy neutral

N2D: (Not Too) Deep Clustering via Clustering the Local Manifold of an Autoencoded Embedding

Deep clustering has increasingly been demonstrating superiority over conventional shallow clustering algorithms. Deep clustering algorithms usually combine representation learning with deep neural networks to achieve this performance, typically optimizing a clustering and non-clustering loss. In such cases, an autoencoder is typically connected with a clustering network, and the final clustering is jointly learned by both the autoencoder and clustering network. Instead, we propose to learn an autoencoded embedding and then search this further for the underlying manifold. For simplicity, we then cluster this with a shallow clustering algorithm, rather than a deeper network. We study a number of local and global manifold learning methods on both the raw data and autoencoded embedding, concluding that UMAP in our framework is best able to find the most clusterable manifold in the embedding, suggesting local manifold learning on an autoencoded embedding is effective for discovering higher quality discovering clusters. We quantitatively show across a range of image and time-series datasets that our method has competitive performance against the latest deep clustering algorithms, including out-performing current state-of-the-art on several. We postulate that these results show a promising research direction for deep clustering. The code can be found at https://github.com/rymc/n2dComment: Accepted at ICPR 202